COVID-19 Resources for ACPOPC members

Hi to all our Members, 

We hope you are staying safe and well during these extraordinary times. 

We have been keeping our Twitter feed and website up to date with relevant COVID-19 resources as and when we have them. However we know not everyone uses Twitter, so we thought it might be useful to do a regular email update as and when useful information comes through. I am attending a regular update meeting on nationwide COVID-19 responses through the Ambitions Partnership and NHSE EOL board and will share anything useful from these. We are also engaging with the CSP on the ongoing need for rehab for COVID-19 patients & how this affects our speciality. If you have any thoughts on this please let me know. 

It would be really helpful for us to hear about anything you are doing that could be useful for other members: whether this is working in different roles to your usual ones; any digital innovations enabling you to continue providing patients support; or other changes in ways of working. Please get in touch with me if you have anything to share. 

The below are a mix of resources for clinician, patient and family support as well as clinical guidelines. 

• https://www.ourfrontline.org/ 'Our Frontline' offers round-the-clock one-to-one support, by call or text, from trained volunteers, plus resources, tips and ideas to look after your mental health. 'Our Frontline' is a partnership between Shout, Samaritans, Mind, Hospice UK and The Royal Foundation of the Duke and Duchess of Cambridge.
• https://nationalbereavementalliance.org.uk/keeping-in-touch-when-someone-is-seriously-ill/ guide with ideas for family members to keep in touch with people they can't visit
• https://apmonline.org/ Association of Palliative Medicine COVID-19 guidelines (they ask for this not to be shared on social media so that it is seen by clinicians only - may be sensitive to members of the public)
• https://www.dropbox.com/s/q5qvjsoq4f455c9/FINAL%20Physiotherapy_Guideline_COVID-19_V1_Dated23March2020_endorsed.pdf?dl=0 Physiotherapy management for COVID-19 in the acute hospital setting. - not oncology or palliative care specific but really useful info from ACPRC
• https://www.bgs.org.uk/resources/covid-19-managing-the-covid-19-pandemic-in-care-homes COVID-19: Managing the COVID-19 pandemic in care homes for older people from the British Geriatric Society 
• Macmillan have pulled together a number of resources on their website about COVID-19, including bringing all of their 'Move More' DVD videos into one place https://www.macmillan.org.uk/coronavirus/preparing-for-cancer-treatment-while-at-home 
• https://www.royalmarsden.nhs.uk/your-care/living-and-beyond-cancer/exercise-home Exercise at home resources from the Royal Marsden, with different levels for different exercise tolerances- may be useful for prehabilitation after cancer diagnosis 
• Zoom recording of the IPT-HOPE COVID-19 plus Cancer/HIV/Palliative Care Discussion Forumhttps://us02web.zoom.us/rec/share/yMF7Lu_v115OZKPN5m_kVKgmFKD0T6a81nQe_qVYzkyK1ezdKFirNn9UgsrghPng Password: 5x%.@5$$
• https://www.kcl.ac.uk/cicelysaunders/resources/content-for-khp-gp-breathlessness-resource-v6.pdf - Managing breathlessness at home during COVID-19 outbreak resource from Cicely Saunders Institute 
• https://www.england.nhs.uk/coronavirus/publication/advance-care-planning-guidance-and-template/ COVID-19 Advance Care Planning document (appears very similar to other ACP documents available but may be useful)
• https://www.widgit.com/products/health/covid19-communication-chart.htm Developed together with the Speech and Language Therapy Team at Weston General Hospital, this symbol board can assist medical staff in communication with patients who are critically ill due to Covid19. It can make communication possible even if the patient is being ventilated or has a tracheostomy (but is alert).

Please let me know if you are aware of other resources and we will share these on our next update. 

Thank you, stay safe everyone. 

Emily Stowe

ACPOPC Chair

chair.acpopc@gmail.com