The Anthony Nolan Trust have created a post-transplant care pathway in collaboration with an Expert Steering Group consisting of healthcare professionals, managers and patients. They are looking for feedback on the draft pathway
Earlier this year, Anthony Nolan launched a new initiative aimed at improving the commissioning of post-transplant care in England.
'We know that the fragmented arrangement for funding care after 100 days, when responsibility transfers from national to local commissioners, has led to gaps and variation in the services that transplant centres are able to provide. Together with the Expert Steering Group, which is chaired by Dr Fiona Dignan, Consultant Haematologist and Clinical Lead for Haematology at Manchester University NHS Foundation Trust, our initial focus has been on the development of an optimum post-transplant care pathway setting out the key services that adult and paediatric patients need after an allogeneic stem cell transplant. It is our intention that the pathway will form part of a larger report for commissioners, aimed at ensuring that the needs of patients are fully understood and that transplant centres receive the appropriate support to meet them. Therefore, please note that the pathway is not an immediate set of expectations to be placed on transplant centres.
We would be very grateful if you could provide feedback on the draft pathway by answering our online survey. Specifically, we are interested to know to what extent you think it represents ‘gold-standard’ post-transplant care for adult and paediatric patients. Although our work is focussed on England, we welcome responses from the Devolved Nations.
Your views will be used to inform the next iteration of the pathway and Anthony Nolan’s final report for commissioners, which we plan to publish in Spring 2019. If you have any questions or would like more information, please do not hesitate to contact us on PTCpathway@anthonynolan.org or 020 7424 1391.
We would be extremely grateful if you could provide feedback by answering our online survey before 5pm on Friday 2 November.'
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